What is the Goal of This Study?
This study is recruiting people with cirrhosis and their loved ones in order to understand if a website with educational materials can help improve their knowledge.
The study involves you reading some education on cirrhosis, including written text and videos and answering questions to check your knowledge.
Frequently Asked Questions
Participation in this study will help us understand if the educational materials we’ve developed are helpful to improve knowledge for patients with cirrhosis and their loved ones.
In order to keep track of the learning modules that you have completed, you will be asked to provide a username and email. The information that you will share will remain strictly confidential and will be used solely for the purposes of this research. All efforts will be made to keep your information as secure as possible, but as this interaction happens online, there is always a risk of the information being exposed. The only people who will have access to the research data are the investigators listed above and their research assistants. Your answers to open-ended questions may be used word-for-word in presentations and publications but you will not be identified. Results will be published in pooled (aggregate) format.
Each module should take you approximately 5-10 minutes to complete.
You will not receive any compensation from participating in this study. It is possible that will experience no benefit for participating in this study. The feedback you provide will be used to make improvements to the educational materials to help other patients with cirrhosis and their loved ones.
You are under no obligation to participate and if you choose to participate, you may refuse to answer questions that you do not want to answer. If you choose to have your data withdrawn from the study, this will be possible only before the data are analyzed. You can email the study email at [email protected] and provide them with the email you enrolled with if you want to have your study data removed.
Who are the researchers?
Dr. Puneeta Tandon, Principal Investigator
Dr. Ashley Hyde, Postdoctoral Fellow
Emily Johnson, Masters Student